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Research ArticlePediatric Rheumatology
Open Access

Evaluation of a Pediatric-Adult Dyad Care Model for Transitioning Youth With Childhood-Onset Systemic Lupus Erythematosus

Tala El Tal, Amanda Steiman, Andrea Knight, Linda T. Hiraki, Deborah M. Levy, Alene Toulany and Earl D. Silverman
The Journal of Rheumatology November 2025, 52 (11) 1151-1158; DOI: https://doi.org/10.3899/jrheum.2025-0046
Tala El Tal
1T. El Tal, MD, MSc, Division of Rheumatology, Department of Pediatrics, The Hospital for Sick Children, University of Toronto, Toronto and Division of Rheumatology and Dermatology, Department of Pediatrics, Children’s Hospital of Eastern Ontario, University of Ottawa, Ottawa;
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  • ORCID record for Tala El Tal
Amanda Steiman
2A. Steiman, MD, MSc, Division of Rheumatology, Department of Medicine, University of Toronto, Sinai Health System/University Health Network, Toronto;
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  • For correspondence: amanda.steiman{at}sinaihealth.ca
Andrea Knight
3A. Knight, MD, MSCE, L.T. Hiraki, MD, ScD, D.M. Levy, MD, MS, Division of Rheumatology, Department of Pediatrics, The Hospital for Sick Children and Department of Pediatrics, Temerty Faculty of Medicine, University of Toronto, Toronto;
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Linda T. Hiraki
3A. Knight, MD, MSCE, L.T. Hiraki, MD, ScD, D.M. Levy, MD, MS, Division of Rheumatology, Department of Pediatrics, The Hospital for Sick Children and Department of Pediatrics, Temerty Faculty of Medicine, University of Toronto, Toronto;
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Deborah M. Levy
3A. Knight, MD, MSCE, L.T. Hiraki, MD, ScD, D.M. Levy, MD, MS, Division of Rheumatology, Department of Pediatrics, The Hospital for Sick Children and Department of Pediatrics, Temerty Faculty of Medicine, University of Toronto, Toronto;
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Alene Toulany
4A. Toulany, MD, MSc, Department of Adolescent Medicine, The Hospital for Sick Children, University of Toronto, Toronto;
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Earl D. Silverman
5E.D. Silverman, MD, Division of Rheumatology, Department of Pediatrics and Translational Medicine, Research Institute, The Hospital for Sick Children, Toronto, Ontario, Canada.
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PLAIN LANGUAGE SUMMARY

Transition care helps teenagers and young adults with long-term health issues like lupus move from pediatric to adult healthcare systems. This process is often difficult, with only 50% successfully making the transition

We developed a new transition model that starts at The Hospital for Sick Children (SickKids) and moves to the Young Adult Systemic Lupus Erythematosus (YASLE) Clinic at Mount Sinai Hospital when patients turn 18. The unique feature of this model is that patients see both pediatric and adult doctors for 4 years before continuing with only the adult doctor.

We reviewed the medical records of all patients with lupus who graduated from SickKids over a 7-year period. Our study showed that this model works well: 98.2% of patients saw the YASLE doctors within a year (usually in about 3.5 months), 97.5% came back for more than 1 visit, and 94.2% kept getting care at MSH for an average of more than 5 years.

We suggest that other clinics use this transition model. Key parts of its success are the teamwork and good communication between the pediatric and adult doctors and with patients and their families.

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The Journal of Rheumatology: 52 (11)
The Journal of Rheumatology
Vol. 52, Issue 11
1 Nov 2025
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Evaluation of a Pediatric-Adult Dyad Care Model for Transitioning Youth With Childhood-Onset Systemic Lupus Erythematosus
Tala El Tal, Amanda Steiman, Andrea Knight, Linda T. Hiraki, Deborah M. Levy, Alene Toulany, Earl D. Silverman
The Journal of Rheumatology Nov 2025, 52 (11) 1151-1158; DOI: 10.3899/jrheum.2025-0046

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Evaluation of a Pediatric-Adult Dyad Care Model for Transitioning Youth With Childhood-Onset Systemic Lupus Erythematosus
Tala El Tal, Amanda Steiman, Andrea Knight, Linda T. Hiraki, Deborah M. Levy, Alene Toulany, Earl D. Silverman
The Journal of Rheumatology Nov 2025, 52 (11) 1151-1158; DOI: 10.3899/jrheum.2025-0046
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Keywords

adult rheumatology
PEDIATRIC RHEUMATOLOGY
SYSTEMIC LUPUS ERYTHEMATOSUS
transition

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Keywords

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