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Research ArticleSAPHO Syndrome

Quality of Life in Adult Patients With SAPHO Syndrome and Chronic Nonbacterial Osteomyelitis, and Comparison to Chronic Rheumatic and Inflammatory Diseases

Aleksander Lenert, Jenna Thomason, Melanie H. Smith, Helena Abodeely, Sandy D. Hong, Courtney E. Kremer, Petar S. Lenert, T. Shawn Sato, Sandra Hansmann, Melissa Oliver, Yongdong (Dan) Zhao, Jonathan Templin, Mary Vaughan-Sarrazin, Robyn Domsic, Daniel H. Solomon and Polly J. Ferguson
The Journal of Rheumatology October 2025, 52 (10) 1034-1042; DOI: https://doi.org/10.3899/jrheum.2025-0414
Aleksander Lenert
1A. Lenert, MD, MS, H. Abodeely, P.S. Lenert, MD, PhD, Division of Immunology, Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA;
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  • ORCID record for Aleksander Lenert
  • For correspondence: aleksander-lenert{at}uiowa.edu
Jenna Thomason
2J. Thomason, MD, MPH, Division of Rheumatology, University of Washington, Rheumatology Clinic at Harborview, Seattle, Washington, USA;
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  • ORCID record for Jenna Thomason
Melanie H. Smith
3M.H. Smith, MD, PhD, Weill Cornell Medicine, Hospital for Special Surgery, New York, New York, USA;
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  • ORCID record for Melanie H. Smith
Helena Abodeely
1A. Lenert, MD, MS, H. Abodeely, P.S. Lenert, MD, PhD, Division of Immunology, Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA;
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Sandy D. Hong
4S.D. Hong, MD, C.E. Kremer, ARNP, Division of Pediatric Rheumatology, University of Iowa Stead Family Children’s Hospital, Iowa City, Iowa, USA;
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  • ORCID record for Sandy D. Hong
Courtney E. Kremer
4S.D. Hong, MD, C.E. Kremer, ARNP, Division of Pediatric Rheumatology, University of Iowa Stead Family Children’s Hospital, Iowa City, Iowa, USA;
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Petar S. Lenert
1A. Lenert, MD, MS, H. Abodeely, P.S. Lenert, MD, PhD, Division of Immunology, Department of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa, USA;
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  • ORCID record for Petar S. Lenert
T. Shawn Sato
5T.S. Sato, MD, Department of Radiology, University of Iowa Hospitals and Clinics, Iowa City, Iowa, USA;
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  • ORCID record for T. Shawn Sato
Sandra Hansmann
6S. Hansmann, MD, Department of Pediatrics, Division of Pediatric Rheumatology and autoinflammation reference center Tübingen (arcT), University Hospital Tübingen, Tübingen, Germany;
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Melissa Oliver
7M. Oliver, MD, Division of Pediatric Rheumatology, Indiana University School of Medicine, Indianapolis, Indiana, USA;
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  • ORCID record for Melissa Oliver
Yongdong (Dan) Zhao
8Y. Zhao, MD, PhD, Division of Pediatric Rheumatology, Department of Pediatrics, University of Washington School of Medicine, Seattle Children’s Hospital, Seattle, Washington, USA;
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Jonathan Templin
9J. Templin, PhD, Department of Psychological and Quantitative Foundations, College of Education, University of Iowa, Iowa City, Iowa, USA;
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Mary Vaughan-Sarrazin
10M. Vaughan-Sarrazin, PhD, Department of Internal Medicine, University of Iowa Carver College of Medicine, Iowa City, Iowa, USA;
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Robyn Domsic
11R. Domsic, MD, MPH, Division of Rheumatology and Clinical Immunology, University of Pittsburgh, Pittsburgh, Pennsylvania, USA;
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Daniel H. Solomon
12D.H. Solomon, MD, MPH, Division of Rheumatology, Inflammation, and Immunity, Brigham and Women’s Hospital and Harvard Medical School, Boston, Massachusetts, USA;
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Polly J. Ferguson
13P.J. Ferguson, MD, Division of Pediatric Rheumatology, Carver College of Medicine, University of Iowa Stead Family Children’s Hospital, Iowa City, Iowa, USA.
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The Journal of Rheumatology: 52 (10)
The Journal of Rheumatology
Vol. 52, Issue 10
1 Oct 2025
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Quality of Life in Adult Patients With SAPHO Syndrome and Chronic Nonbacterial Osteomyelitis, and Comparison to Chronic Rheumatic and Inflammatory Diseases
Aleksander Lenert, Jenna Thomason, Melanie H. Smith, Helena Abodeely, Sandy D. Hong, Courtney E. Kremer, Petar S. Lenert, T. Shawn Sato, Sandra Hansmann, Melissa Oliver, Yongdong (Dan) Zhao, Jonathan Templin, Mary Vaughan-Sarrazin, Robyn Domsic, Daniel H. Solomon, Polly J. Ferguson
The Journal of Rheumatology Oct 2025, 52 (10) 1034-1042; DOI: 10.3899/jrheum.2025-0414

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Quality of Life in Adult Patients With SAPHO Syndrome and Chronic Nonbacterial Osteomyelitis, and Comparison to Chronic Rheumatic and Inflammatory Diseases
Aleksander Lenert, Jenna Thomason, Melanie H. Smith, Helena Abodeely, Sandy D. Hong, Courtney E. Kremer, Petar S. Lenert, T. Shawn Sato, Sandra Hansmann, Melissa Oliver, Yongdong (Dan) Zhao, Jonathan Templin, Mary Vaughan-Sarrazin, Robyn Domsic, Daniel H. Solomon, Polly J. Ferguson
The Journal of Rheumatology Oct 2025, 52 (10) 1034-1042; DOI: 10.3899/jrheum.2025-0414
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Keywords

CHRONIC RECURRENT MULTIFOCAL OSTEOMYELITIS
COHORT STUDY
HEALTH-RELATED QUALITY OF LIFE
SAPHO SYNDROME
scoping review

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Keywords

  • chronic recurrent multifocal osteomyelitis
  • cohort study
  • HEALTH-RELATED QUALITY OF LIFE
  • SAPHO syndrome
  • scoping review

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