Addressing Healthcare Quality in Juvenile Idiopathic Arthritis With a Universal Access Program

REFERENCES

1. 1.↵
   1. Concha S,
   2. Morales PS,
   3. Talesnik E,
   4. Borzutzky A.

   Changes in treatments and outcomes after implementation of a national universal access program for juvenile idiopathic arthritis. J Rheumatol 2021:48:1725-31.

   OpenUrlAbstract/FREE Full Text
2. 2.↵
   1. Wallace CA,
   2. Ravelli A,
   3. Huang B,
   4. Giannini EH

   . Preliminary validation of clinical remission criteria using the OMERACT filter for select categories of juvenile idiopathic arthritis. J Rheumatol 2006;33:789-95.

   OpenUrlAbstract/FREE Full Text
3. 3.↵
   1. Aquilera, I,
   2. Infante A,
   3. Ormeño H,
   4. Urriola, C.

   Improving health system efficiency: Chile: implementation of the Universal Access with Explicit Guarantees (AUGE) reform. 2015. [Internet. Accessed June 18, 2021.] Available from: https://apps.who.int/iris/handle/10665/187657
4. 4.↵
   1. Institute of Medicine (US) Committee on Quality of Healthcare in America

   . Crossing the quality chasm: a new health system for the 21st century. Washington, DC: National Academies Press; 2001.
5. 5.↵
   1. Saag KG,
   2. Yazdany J,
   3. Alexander C,
   4. Caplan L,
   5. Coblyn J,
   6. Desai SP, et al; American College of Rheumatology Quality Measurement White Paper Development Workgroup

   . Defining quality of care in rheumatology: the American College of Rheumatology white paper on quality measurement. Arthritis Care Res 2011;63: 2-9.

   OpenUrlCrossRefPubMed
6. 6.↵
   1. Sawhney S.
   2. Magalhaes CS.

   Paediatric rheumatology--a global perspective. Best Pract Res Clin Rheumatol 2006;20:201-21.

   OpenUrlCrossRefPubMed
7. 7.↵
   1. Barber CEH,
   2. Barnabe C,
   3. Benseler S,
   4. Chin R,
   5. Johnson N,
   6. Luca N, et al.

   Patient factors associated with waiting time to pediatric rheumatologist consultation for patients with juvenile idiopathic arthritis. Pediatr Rheumatol Online J 2020;18:22.

   OpenUrl
8. 8.↵
   1. Consolaro A,
   2. Giancane G,
   3. Alongi A,
   4. van Dijkhuizen EHP,
   5. Aggarwal A,
   6. Al-Mayouf SM, et al; Paediatric Rheumatology International Trials Organisation

   . Phenotypic variability and disparities in treatment and outcomes of childhood arthritis throughout the world: an observational cohort study. Lancet Child Adolesc Health 2019;3:255-63.

   OpenUrl
9. 9.↵
   1. Wait Time Alliance (WTA)

   . Time to close the gap: report card on wait times in Canada (2014). [Internet. Accessed June 18, 2021.] Available from: www.waittimealliance.ca/wta-reports/2014-wta-report-card
10. 10.↵
    1. Batthish M,
    2. Berard R,
    3. Cabral D,
    4. Bolaria R,
    5. Chédeville G,
    6. Duffy C, et al; Canadian Alliance of Pediatric Rheumatology Investigators

    . A new Canadian inception cohort for juvenile idiopathic arthritis: the Canadian Alliance of Pediatric Rheumatology Investigators Registry. Rheumatology 2020;59:2796-805.

    OpenUrl
11. 11.↵
    1. Davies K,
    2. Cleary G,
    3. Foster H,
    4. Hutchinson E,
    5. Baildam E; British Society of Paediatric and Adolescent Rheumatology

    . BSPAR Standards of Care for children and young people with juvenile idiopathic arthritis. Rheumatology 2010;49:1406-8.

    OpenUrlCrossRefPubMed
12. 12.↵
    1. Constantin T,
    2. Foeldvari I,
    3. Anton J,
    4. de Boer J,
    5. Czitrom-Guillaume S,
    6. Edelsten C, et al.

    Consensus-based recommendations for the management of uveitis associated with juvenile idiopathic arthritis: the SHARE initiative. Ann Rheum Dis 2018;77:1107-17.

    OpenUrlAbstract/FREE Full Text
13. 13.↵
    1. Kavirayani A,
    2. Foster HE; British Society for Paediatric and Adolescent Rheumatology

    . Paediatric rheumatology practice in the UK benchmarked against the British Society for Paediatric and Adolescent Rheumatology/Arthritis and Musculoskeletal Alliance Standards of Care for juvenile idiopathic arthritis. Rheumatology 2013;52:2203-7.

    OpenUrlCrossRefPubMed
14. 14.↵
    1. Foster HE,
    2. Minden K,
    3. Clemente D,
    4. Leon L,
    5. McDonagh JE,
    6. Kamphuis S, et al.

    EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases. Ann Rheum Dis 2017;76:639-46.

    OpenUrlAbstract/FREE Full Text
15. 15.↵
    1. White PH,
    2. Ardoin S.

    Transitioning wisely: improving the connection from pediatric to adult health care. Arthritis Rheumatol 2016;68:789-94.

    OpenUrl
16. 16.↵
    1. Bingham CA,
    2. Scalzi L,
    3. Groh B,
    4. Boehmer S,
    5. Banks S.

    An assessment of variables affecting transition readiness in pediatric rheumatology patients. Pediatr Rheumatol Online J 2015;13:42.

    OpenUrl
17. 17.↵
    1. Felsenstein S,
    2. Reiff AO,
    3. Ramanathan A.

    Transition of care and health-related outcomes in pediatric-onset systemic lupus erythematosus. Arthritis Care Res 2015;67:1521-8.

    OpenUrlCrossRef
18. 18.↵
    1. Hazel E,
    2. Zhang X,
    3. Duffy CM,
    4. Campillo S.

    High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatr Rheumatol Online J 2010;8:2.

    OpenUrlCrossRefPubMed
19. 19.↵
    1. Hersh AO,
    2. Pang S,
    3. Curran ML,
    4. Milojevic DS,
    5. von Scheven E.

    The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center. Pediatr Rheumatol Online J 2009;7:13.

    OpenUrlCrossRefPubMed
20. 20.↵
    1. Huang JS,
    2. Gottschalk M,
    3. Pian M,
    4. Dillon L,
    5. Barajas D,
    6. Bartholomew LK, et al.

    Transition to adult care: systematic assessment of adolescents with chronic illnesses and their medical teams. J Pediatr 2011;159:994-8.e2.

    OpenUrlCrossRefPubMed
21. 21.
    1. Agency for Healthcare Research and Quality

    . Six domains of health care quality. Rockville, MD. [Internet. Accessed July 13, 2021.] Available from: www.ahrq.gov/talkingquality/measures/six-domains.html