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Review ArticleReview

Qualitative Research in Rheumatology: An Overview of Methods and Contributions to Practice and Policy

Ayano Kelly, Kathleen Tymms, Kieran Fallon, Daniel Sumpton, Peter Tugwell, David Tunnicliffe and Allison Tong
The Journal of Rheumatology January 2021, 48 (1) 6-15; DOI: https://doi.org/10.3899/jrheum.191368
Ayano Kelly
1A. Kelly, MBBS, FRACP, College of Health and Medicine, Australian National University, Canberra, and Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, and Canberra Rheumatology, Canberra, and Department of Rheumatology, The Canberra Hospital, Canberra, Australia;
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  • For correspondence: Ayano.Kelly@anu.edu.au
Kathleen Tymms
2K. Tymms, MBBS, FRACP, College of Health and Medicine, Australian National University, and Canberra Rheumatology, and Department of Rheumatology, The Canberra Hospital, Canberra, Australia;
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Kieran Fallon
3K. Fallon, FACSEP, College of Health and Medicine, Australian National University, and Department of Rheumatology, The Canberra Hospital, Canberra, Australia;
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Daniel Sumpton
4D. Sumpton, MBBS, FRACP, Centre for Kidney Research, The Children’s Hospital at Westmead, and Sydney School of Public Health, The University of Sydney, and Department of Rheumatology, Concord Hospital, Sydney, Australia;
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Peter Tugwell
5P. Tugwell, MD, Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada;
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David Tunnicliffe
6D. Tunnicliffe, PhD, A. Tong, PhD, Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, and Sydney School of Public Health, The University of Sydney, Sydney, Australia.
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Allison Tong
6D. Tunnicliffe, PhD, A. Tong, PhD, Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, and Sydney School of Public Health, The University of Sydney, Sydney, Australia.
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Abstract

Patient-centered care is widely advocated in rheumatology. This involves collaboration among patients, caregivers, and health professionals and is particularly important in chronic rheumatic conditions because the disease and treatment can impair patients’ health and well-being. Qualitative research can systematically generate insights about people’s experiences, beliefs, and attitudes, which patients may not always express in clinical settings. These insights can address complex and challenging areas in rheumatology, such as treatment adherence and transition to adult healthcare services. Despite this, qualitative research comprises 1% of studies published in top-tier rheumatology journals. A better understanding about the effect and role, methods, and rigor of qualitative research is needed. This overview highlights the recent contributions of qualitative research in rheumatology, summarizes the common approaches and methods used, and outlines the key principles to guide appraisal of qualitative studies.

Key Indexing Terms:
  • focus groups
  • qualitative research
  • research design
  • research methodology
  • semistructured interviews
  • Accepted for publication June 26, 2020.
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The Journal of Rheumatology
Vol. 48, Issue 1
1 Jan 2021
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Qualitative Research in Rheumatology: An Overview of Methods and Contributions to Practice and Policy
Ayano Kelly, Kathleen Tymms, Kieran Fallon, Daniel Sumpton, Peter Tugwell, David Tunnicliffe, Allison Tong
The Journal of Rheumatology Jan 2021, 48 (1) 6-15; DOI: 10.3899/jrheum.191368

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Qualitative Research in Rheumatology: An Overview of Methods and Contributions to Practice and Policy
Ayano Kelly, Kathleen Tymms, Kieran Fallon, Daniel Sumpton, Peter Tugwell, David Tunnicliffe, Allison Tong
The Journal of Rheumatology Jan 2021, 48 (1) 6-15; DOI: 10.3899/jrheum.191368
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Keywords

focus groups
QUALITATIVE RESEARCH
RESEARCH DESIGN
research methodology
SEMISTRUCTURED INTERVIEWS

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