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Research ArticleOther Arthritides

“Unspoken Questions”: A Qualitative Study of Rheumatologists’ Perspectives on the Clinical Implementation of Patient-reported Outcome Measures

Shanthini Kasturi, John B. Wong, Lisa A. Mandl, Timothy E. McAlindon and Amy LeClair
The Journal of Rheumatology December 2020, 47 (12) 1822-1830; DOI: https://doi.org/10.3899/jrheum.200232
Shanthini Kasturi
1S. Kasturi, MD, MS, T.E. McAlindon, MD, MPH, Division of Rheumatology, Allergy & Immunology/Department of Medicine, Tufts Medical Center, Boston, Massachusetts;
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  • ORCID record for Shanthini Kasturi
  • For correspondence: skasturi@tuftsmedicalcenter.org
John B. Wong
2J.B. Wong, MD, Division of Clinical Decision Making, Tufts Medical Center, Boston, Massachusetts;
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Lisa A. Mandl
3L.A. Mandl, MD, MPH, Division of Rheumatology/Department of Medicine, Hospital for Special Surgery and Weill Cornell Medicine, New York, New York;
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Timothy E. McAlindon
1S. Kasturi, MD, MS, T.E. McAlindon, MD, MPH, Division of Rheumatology, Allergy & Immunology/Department of Medicine, Tufts Medical Center, Boston, Massachusetts;
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Amy LeClair
4A.LeClair, PhD, Institute for Clinical Research and Health Policy Studies, Tufts Medical Center, Boston, Massachusetts, USA.
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Abstract

Objective To identify rheumatologists’ views on perceived barriers and facilitators to the clinical implementation of patient-reported outcome measures (PROM).

Methods Semistructured interviews were conducted with academically affiliated clinical rheumatologists. Interviews were audio-recorded and transcribed. Deidentified transcripts were independently coded and analyzed for themes.

Results Fifteen attending rheumatologists, 8 women (53%) and 7 men (47%) with a mean of 17.3 years in practice (range 5–43) at 2 urban academic medical centers, participated in interviews. Rheumatologists identified several barriers to integrating PROM in clinical care, highlighting physician buy-in and culture change as significant challenges beyond logistical considerations. They further underscored the lack of effective interventions and resources for addressing the domains of most interest to patients. Physicians also recognized significant benefits of PROM in clinical care, including contributing to the clinical impression by providing the patient perspective, and promoting agenda setting by uncovering “unspoken questions.” They additionally noted that PROM could support treatment planning, build patient-physician relationships, and facilitate patient engagement. Participants suggested that technology, physician education, and team-based care could facilitate the effective implementation of PROM.

Conclusion Rheumatologists identified multiple mechanisms through which PROM could augment clinical care, but also noted several obstacles to implementation, questioning the added value of PROM and the limited availability of interventions to improve patient-centered outcomes. Programs seeking to successfully integrate PROM to enhance patient-centered care and meet quality benchmarks should prioritize physician buy-in and training, and provide resources to address the outcomes that are measured.

Key Indexing Terms:
  • patient-centered care
  • patient-reported outcome measures
  • qualitative research
  • rheumatologists
  • Accepted for publication June 12, 2020.
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The Journal of Rheumatology
Vol. 47, Issue 12
1 Dec 2020
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“Unspoken Questions”: A Qualitative Study of Rheumatologists’ Perspectives on the Clinical Implementation of Patient-reported Outcome Measures
Shanthini Kasturi, John B. Wong, Lisa A. Mandl, Timothy E. McAlindon, Amy LeClair
The Journal of Rheumatology Dec 2020, 47 (12) 1822-1830; DOI: 10.3899/jrheum.200232

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“Unspoken Questions”: A Qualitative Study of Rheumatologists’ Perspectives on the Clinical Implementation of Patient-reported Outcome Measures
Shanthini Kasturi, John B. Wong, Lisa A. Mandl, Timothy E. McAlindon, Amy LeClair
The Journal of Rheumatology Dec 2020, 47 (12) 1822-1830; DOI: 10.3899/jrheum.200232
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Keywords

patient-centered care
PATIENT-REPORTED OUTCOME MEASURES
QUALITATIVE RESEARCH
rheumatologists

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