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Research ArticleArticle

The Cost of Research: A Survey of Participating Sites in a Nationwide Registry

Jenna L. Tress and David D. Sherry
The Journal of Rheumatology April 2015, 42 (4) 702-705; DOI: https://doi.org/10.3899/jrheum.141122
Jenna L. Tress
From The Children’s Hospital of Philadelphia, Division of Rheumatology, Philadelphia, Pennsylvania, USA.
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  • For correspondence: tressj{at}email.chop.edu
David D. Sherry
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Abstract

Objective. Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion.

Methods. A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment.

Results. Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided.

Conclusion. This survey showed that reimbursement rates were well below the costs of enrollment.

Key Indexing Terms:
  • REGISTRIES
  • JUVENILE RHEUMATOID DISEASES
  • SURVEY
  • TRIAL COSTS
  • Accepted for publication December 17, 2014.
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1 Apr 2015
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The Cost of Research: A Survey of Participating Sites in a Nationwide Registry
Jenna L. Tress, David D. Sherry
The Journal of Rheumatology Apr 2015, 42 (4) 702-705; DOI: 10.3899/jrheum.141122

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The Cost of Research: A Survey of Participating Sites in a Nationwide Registry
Jenna L. Tress, David D. Sherry
The Journal of Rheumatology Apr 2015, 42 (4) 702-705; DOI: 10.3899/jrheum.141122
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Keywords

REGISTRIES
JUVENILE RHEUMATOID DISEASES
SURVEY
TRIAL COSTS

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  • TRIAL COSTS

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