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Research ArticleOMERACT 12 — International Consensus Conference on Outcome Measures in Rheumatology, Budapest, Hungary, May 7–11, 2014

Enhanced Patient Involvement and the Need to Revise the Core Set — Report from the Psoriatic Arthritis Working Group at OMERACT 2014

William Tillett, Lihi Eder, Niti Goel, Maarten De Wit, Dafna D. Gladman, Oliver FitzGerald, Willemina Campbell, Philip S. Helliwell, Laure Gossec, Ana-Maria Orbai, Alexis Ogdie, Vibeke Strand, Neil J. McHugh and Philip J. Mease
The Journal of Rheumatology November 2015, 42 (11) 2198-2203; DOI: https://doi.org/10.3899/jrheum.141156
William Tillett
From the Royal National Hospital for Rheumatic Diseases, Bath, UK; Toronto Western Hospital; Psoriatic Arthritis Program, University Health Network, Toronto Western Research Institute, Toronto, Ontario, Canada; St. Vincent’s University Hospital, Dublin, Ireland; Quintiles; Duke University School of Medicine; Durham, North Carolina, USA; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; Chapel Allerton Hospital, Leeds, UK; Sorbonne Universités, Université Pierre et Marie Curie—Paris 6 (UPMC Univ Paris 6), Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France; Johns Hopkins University School of Medicine, Division of Rheumatology, Baltimore, Maryland; Division of Immunology/Rheumatology, Stanford University School of Medicine, Portola Valley, California, USA; University of Bath, Bath, UK; Swedish Medical Center, University of Washington, Seattle, Washington; Hospital of the University of Pennsylvania (HUP), Philadelphia, Pennsylvania, USA.
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Lihi Eder
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Niti Goel
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Maarten De Wit
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Dafna D. Gladman
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Oliver FitzGerald
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Willemina Campbell
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Philip S. Helliwell
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Laure Gossec
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Ana-Maria Orbai
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Alexis Ogdie
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Vibeke Strand
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Neil J. McHugh
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Philip J. Mease
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  • For correspondence: pmease@philipmease.com
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Article Information

vol. 42 no. 11 2198-2203
DOI 
https://doi.org/10.3899/jrheum.141156
PubMed 
25934828

Published By 
The Journal of Rheumatology
Print ISSN 
0315-162X
Online ISSN 
1499-2752
History 
  • Published online November 1, 2015.

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  • Latest version (May 1, 2015 - 04:00).
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Copyright & Usage 
© 2015

Author Information

  1. William Tillett,
  2. Lihi Eder,
  3. Niti Goel,
  4. Maarten De Wit,
  5. Dafna D. Gladman,
  6. Oliver FitzGerald,
  7. Willemina Campbell,
  8. Philip S. Helliwell,
  9. Laure Gossec,
  10. Ana-Maria Orbai,
  11. Alexis Ogdie,
  12. Vibeke Strand,
  13. Neil J. McHugh and
  14. Philip J. Mease⇑
  1. From the Royal National Hospital for Rheumatic Diseases, Bath, UK; Toronto Western Hospital; Psoriatic Arthritis Program, University Health Network, Toronto Western Research Institute, Toronto, Ontario, Canada; St. Vincent’s University Hospital, Dublin, Ireland; Quintiles; Duke University School of Medicine; Durham, North Carolina, USA; Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds; Chapel Allerton Hospital, Leeds, UK; Sorbonne Universités, Université Pierre et Marie Curie—Paris 6 (UPMC Univ Paris 6), Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France; Johns Hopkins University School of Medicine, Division of Rheumatology, Baltimore, Maryland; Division of Immunology/Rheumatology, Stanford University School of Medicine, Portola Valley, California, USA; University of Bath, Bath, UK; Swedish Medical Center, University of Washington, Seattle, Washington; Hospital of the University of Pennsylvania (HUP), Philadelphia, Pennsylvania, USA.
  2. W. Tillett*, MB, ChB, BSc, MRCP, PhD, Research Fellow, Royal National Hospital for Rheumatic Diseases; L. Eder*, MD, PhD, Postdoctoral Research Fellow, Toronto Western Hospital; M. de Wit, PhD, OMERACT Patient Research Partner, The Netherlands; D.D. Gladman, MD, FRCPC, Director, Psoriatic Arthritis Program, University Health Network, Senior Scientist, Toronto Western Research Institute; O. FitzGerald, MD, FRCPI, FRCP( UK), Consultant Rheumatologist and Newman Clinical Research Professor, St. Vincent’s University Hospital; N. Goel, MD, OMERACT Patient Research Partner, Quintiles, and Duke University School of Medicine; W. Campbell, BEd, LLB, OMERACT Patient Research Partner; P.S. Helliwell, DM, PhD, FRCP, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Chapel Allerton Hospital; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 6, Institut Pierre Louis d’Epidémiologie et de Santé Publique, and AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology; A.M. Orbai, MD, MHS, Johns Hopkins University School of Medicine, Division of Rheumatology; A. Ogdie, MD, MSCE, HUP; V. Strand, MD, Biopharmaceutical Consultant and Adjunct Clinical Professor, Division of Immunology/Rheumatology, Stanford University School of Medicine; N.J. McHugh, MBChB, MD, FRCP, FRCPath, Professor of Pharmacy and Pharmacology, University of Bath, and Consultant Rheumatologist, Royal National Hospital for Rheumatic Diseases; P.J. Mease, MD, Director, Rheumatology Research, Swedish Medical Center and Clinical Professor, University of Washington.
  1. Address correspondence to Prof. P.J. Mease, Rheumatology Research, Swedish Medical Center, 601 Broadway, Suite 600, Seattle, Washington 98122, USA. E-mail: pmease{at}philipmease.com
  1. ↵* Drs. Tillett and Eder contributed equally to this work.

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Enhanced Patient Involvement and the Need to Revise the Core Set — Report from the Psoriatic Arthritis Working Group at OMERACT 2014
William Tillett, Lihi Eder, Niti Goel, Maarten De Wit, Dafna D. Gladman, Oliver FitzGerald, Willemina Campbell, Philip S. Helliwell, Laure Gossec, Ana-Maria Orbai, Alexis Ogdie, Vibeke Strand, Neil J. McHugh, Philip J. Mease
The Journal of Rheumatology Nov 2015, 42 (11) 2198-2203; DOI: 10.3899/jrheum.141156

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Enhanced Patient Involvement and the Need to Revise the Core Set — Report from the Psoriatic Arthritis Working Group at OMERACT 2014
William Tillett, Lihi Eder, Niti Goel, Maarten De Wit, Dafna D. Gladman, Oliver FitzGerald, Willemina Campbell, Philip S. Helliwell, Laure Gossec, Ana-Maria Orbai, Alexis Ogdie, Vibeke Strand, Neil J. McHugh, Philip J. Mease
The Journal of Rheumatology Nov 2015, 42 (11) 2198-2203; DOI: 10.3899/jrheum.141156
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Keywords

PSORIATIC ARTHRITIS
OMERACT
OUTCOME MEASUREMENT
PATIENT PARTICIPATION

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OMERACT 12 — International Consensus Conference on Outcome Measures in Rheumatology, Budapest, Hungary, May 7–11, 2014

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  • Minimal Clinically Important Difference as Applied in Rheumatology: An OMERACT Rasch Working Group Systematic Review and Critique
Show more OMERACT 12 — International Consensus Conference on Outcome Measures in Rheumatology, Budapest, Hungary, May 7–11, 2014

Part 2: Working Groups

  • Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody–associated Vasculitis Using the OMERACT Process
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Show more Part 2: Working Groups

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Keywords

  • psoriatic arthritis
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