Research ArticleOMERACT 11
Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham III, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song and Lisa Christopher-Stine
The Journal of Rheumatology March 2014, 41 (3) 581-592; DOI: https://doi.org/10.3899/jrheum.131247
Helene Alexanderson
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm,
Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen,
Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland,
USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm,
Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul,
Korea.
Maria Del Grande
Clifton O. Bingham III
Ana-Maria Orbai
Catherine Sarver
Katherine Clegg-Smith
Ingrid E. Lundberg
Yeong Wook Song
Lisa Christopher-Stine

REFERENCES
- 1.↵
- 2.↵
- 3.↵
- Ponyi A,
- Borgulya G,
- Constantin T,
- Vancsa A,
- Gergely L,
- Danko K
- 4.↵
- 5.↵
- Miller FW,
- Rider LG,
- Chung YL,
- Cooper R,
- Danko K,
- Farewell V,
- et al.
- 6.↵
- 7.↵
- Kirwan JR,
- Ahlmen M,
- de Wit M,
- Heiberg T,
- Hehir M,
- Hewlett S,
- et al.
- 8.↵
- Kirwan JR,
- Newman S,
- Tugwell PS,
- Wells GA,
- Hewlett S,
- Idzera L,
- et al.
- 9.↵
- Kirwan JR,
- Hewlett SE,
- Heiberg T,
- Hughes RA,
- Carr M,
- Hehir M,
- et al.
- 10.↵
- Committee of Medicinal Products for Human Use. European Medicines Agency
- 11.↵
- US Food and Drug Administration
- 12.↵
- Critical Path Institute (cPATH)
- 13.↵
- 14.↵
- 15.↵
- 16.↵
- Alexanderson H,
- Lundberg IE,
- Stenstrom CH
- 17.↵
- Bartlett SJ,
- Hewlett S,
- Bingham CO 3rd.,
- Woodworth TG,
- Alten R,
- Pohl C,
- et al.
- 18.↵
- Bingham CO 3rd.,
- Alten R,
- Bartlett SJ,
- Bykerk VP,
- Brooks PM,
- Choy E,
- et al.
- 19.↵
- Hewlett S,
- Sanderson T,
- May J,
- Alten R,
- Bingham CO 3rd.,
- Cross M,
- et al.
- 20.↵
- Rider LG,
- Werth VP,
- Huber AM,
- Alexanderson H,
- Rao AP,
- Ruperto N,
- et al.
- 21.↵
- 22.↵
- 23.↵
- 24.↵
- 25.↵
- 26.↵
- Landgraf J,
- Abetz L,
- Ware J
- 27.↵
- Huber AM,
- Hicks JE,
- Lachenbruch PA,
- Perez MD,
- Zemel SL,
- Rennebohm RM,
- et al.
- 28.↵
- 29.↵
- 30.↵
- 31.↵
- Munro BH
- 32.↵
- Nunnally J
- 33.↵
- 34.↵
- Alexanderson H,
- Reed AM,
- Ytterberg SR
- 35.↵
- Tugwell P,
- Bombardier C,
- Buchanan WW,
- Goldsmith CH,
- Grace E,
- Hanna B
- 36.↵
- 37.↵
- 38.↵
- 39.↵
- Alemo Munters L,
- Dastmalchi M,
- Andgren V,
- Emilsson C,
- Bergegård J,
- Regardt M,
- et al.
- 40.↵
- World Health Organization
- 41.↵
- 42.↵
- 43.↵
- 44.↵
- 45.↵
- 46.↵
- Ghazi E,
- Kling MA,
- Propart K,
- Okawa J,
- Werth VP
- 47.↵
- Campbell RCJ,
- Scott DL,
- Kiely PD,
- Gordon P
- 48.↵
- Campbell RCJ,
- Scott DL,
- Kiely PD,
- Gordon P
- 49.
- Sultan SM,
- Ioannou Y,
- Moss K,
- Isenberg DA
- 50.
- Regardt M,
- Welin Henriksson E,
- Alexanderson H,
- Lundberg IE
- 51.
- Alexanderson H,
- Stenstrom CH,
- Lundberg I
- 52.
- 53.
- Sadjadi R,
- Rose MR; and
- Muscle Study Group
- 54.
- 55.
- Apaz MT,
- Saad-Magalhaes C,
- Pistorio A,
- Ravelli A,
- de Oliveira Sato J,
- Marcantoni MB,
- et al.
- 56.
- 57.
- 58.
- Varni JW
- 59.
- Butbul Aviel Y,
- Stremler R,
- Benseler SM,
- Cameron B,
- Laxer RM,
- Osa S,
- et al.
- 60.
- 61.
- 62.
- 63.
- Rider LG,
- Feldman BM,
- Perez MD,
- Rennebohm RM,
- Lindsley CB,
- Zemel LS,
- et al.
- 64.
- Rider LG,
- Giannini EH,
- Harris-Love M,
- Joe G,
- Isenberg D,
- Pilkington C,
- et al.
- 65.
- 66.
- Ruperto N,
- Ravelli A,
- Pistorio A,
- Ferriani V,
- Calvo I,
- Ganser G,
- et al.
- 67.
- 68.
- 69.
- 70.
- 71.
- Sanner H,
- Gran JT,
- Sjaastad I,
- Flato B
- 72.
- Varju C,
- Petho E,
- Kutas R,
- Czirjak L
- 73.
- 74.
- Takken T,
- Elst E,
- Spermon N,
- Helders PJ,
- Prakken AB,
- van der Net J
- 75.
- McCann LJ,
- Juggins AD,
- Maillard SM,
- Wedderburn LR,
- Davidson JE,
- Murray KJ,
- et al.
- 76.
- 77.
- 78.
- Fix AJ,
- Daughton D
- 79.
- 80.
- 81.
- 82.
- 83.
- 84.
- 85.
- 86.
- 87.
- 88.
- 89.
- 90.
- 91.
- 92.
- McNair DM,
- Lorr M,
- Droppleman LF
In this issue
The Journal of Rheumatology
Vol. 41, Issue 3
1 Mar 2014
Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song, Lisa Christopher-Stine
The Journal of Rheumatology Mar 2014, 41 (3) 581-592; DOI: 10.3899/jrheum.131247
Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song, Lisa Christopher-Stine
The Journal of Rheumatology Mar 2014, 41 (3) 581-592; DOI: 10.3899/jrheum.131247





