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Research ArticleOMERACT 11

Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group

Helene Alexanderson, Maria Del Grande, Clifton O. Bingham III, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song and Lisa Christopher-Stine
The Journal of Rheumatology March 2014, 41 (3) 581-592; DOI: https://doi.org/10.3899/jrheum.131247
Helene Alexanderson
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea.
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Maria Del Grande
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Clifton O. Bingham III
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Ana-Maria Orbai
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Catherine Sarver
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Katherine Clegg-Smith
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Ingrid E. Lundberg
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Yeong Wook Song
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Lisa Christopher-Stine
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  • For correspondence: lchrist4{at}jhmi.edu
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Article Information

vol. 41 no. 3 581-592
DOI 
https://doi.org/10.3899/jrheum.131247
PubMed 
24429182

Published By 
The Journal of Rheumatology
Print ISSN 
0315-162X
Online ISSN 
1499-2752
History 
  • Published online March 1, 2014.

Article Versions

  • Latest version (January 15, 2014 - 12:30).
  • You are viewing the most recent version of this article.
Copyright & Usage 
© 2014

Author Information

  1. Helene Alexanderson,
  2. Maria Del Grande,
  3. Clifton O. Bingham III,
  4. Ana-Maria Orbai,
  5. Catherine Sarver,
  6. Katherine Clegg-Smith,
  7. Ingrid E. Lundberg,
  8. Yeong Wook Song and
  9. Lisa Christopher-Stine⇑
  1. From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea.
  2. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University.
  1. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4{at}jhmi.edu
  1. H. Alexanderson and M. Del Grande contributed equally to this report.

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1 Mar 2014
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Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song, Lisa Christopher-Stine
The Journal of Rheumatology Mar 2014, 41 (3) 581-592; DOI: 10.3899/jrheum.131247

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Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song, Lisa Christopher-Stine
The Journal of Rheumatology Mar 2014, 41 (3) 581-592; DOI: 10.3899/jrheum.131247
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Keywords

MYOSITIS
PATIENT-REPORTED OUTCOMES
OUTCOME AND PROCESS ASSESSMENT

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OMERACT 11

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  • Updating the OMERACT Filter: Implications of Filter 2.0 to Select Outcome Instruments Through Assessment of “Truth”: Content, Face, and Construct Validity
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Disease-specific Outcomes I

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