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Abstract

Evaluation of the presentation of systemic onset juvenile rheumatoid arthritis: data from the Pennsylvania Systemic Onset Juvenile Arthritis Registry (PASOJAR).

Edward M Behrens, Timothy Beukelman, Lisa Gallo, Julie Spangler, Margalit Rosenkranz, Thaschawee Arkachaisri, Rosanne Ayala, Brandt Groh, Terri H Finkel and Randy Q Cron
The Journal of Rheumatology February 2008, 35 (2) 343-348;
Edward M Behrens
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Timothy Beukelman
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Lisa Gallo
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Julie Spangler
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Margalit Rosenkranz
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Thaschawee Arkachaisri
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Rosanne Ayala
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Brandt Groh
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Terri H Finkel
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Randy Q Cron
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Abstract

OBJECTIVE: To characterize the initial clinical and laboratory features of patients with systemic onset juvenile rheumatoid arthritis (soJRA) through a Web-based registry. METHODS: Patients diagnosed with soJRA in the last 15 years at 3 medical centers in Pennsylvania were identified. Data were collected retrospectively using a Web-based interface in compliance with patient privacy standards. Inferential statistics were used to compare features of patients with and without macrophage activation syndrome. RESULTS: We identified 136 patients; 88% of patients presented with arthritis (8% mono-, 45% oligo-, 47% polyarticular). The most common joints involved were the knee (68% of patients with arthritis), wrist (68%), and ankle (57%). The International League of Associations for Rheumatology criteria for systemic juvenile idiopathic arthritis (SJIA) identified only 30% of patients at presentation. CONCLUSION: We successfully characterized the presenting features of a relatively rare disease, soJRA, through the use of a Web-based registry. Current classification criteria for SJIA may not be particularly sensitive for diagnosis at presentation.

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The Journal of Rheumatology
Vol. 35, Issue 2
1 Feb 2008
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Evaluation of the presentation of systemic onset juvenile rheumatoid arthritis: data from the Pennsylvania Systemic Onset Juvenile Arthritis Registry (PASOJAR).
Edward M Behrens, Timothy Beukelman, Lisa Gallo, Julie Spangler, Margalit Rosenkranz, Thaschawee Arkachaisri, Rosanne Ayala, Brandt Groh, Terri H Finkel, Randy Q Cron
The Journal of Rheumatology Feb 2008, 35 (2) 343-348;

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Evaluation of the presentation of systemic onset juvenile rheumatoid arthritis: data from the Pennsylvania Systemic Onset Juvenile Arthritis Registry (PASOJAR).
Edward M Behrens, Timothy Beukelman, Lisa Gallo, Julie Spangler, Margalit Rosenkranz, Thaschawee Arkachaisri, Rosanne Ayala, Brandt Groh, Terri H Finkel, Randy Q Cron
The Journal of Rheumatology Feb 2008, 35 (2) 343-348;
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