… plan to children and families, it can be very difficult to assess whether dosages, duration of
treatment, or changes to the daily regimen were understood by the patient and family (Modi & …

Background The Cystic Fibrosis Questionnaire-Revised is a validated patient-reported
outcome containing both generic scales and scales specific to cystic fibrosis. The minimal …

Given the significant impact that psychosocial factors and epilepsy treatments can have on
the health‐related quality of life (HRQOL) of individuals with epilepsy and their families, there …

Background The Cystic Fibrosis Questionnaire (CFQ) is a disease-specific instrument that
measures health-related quality of life (HRQOL) for adolescents and adults with cystic fibrosis (…

Self-management of chronic pediatric conditions is a formidable challenge for patients,
families, and clinicians, with research demonstrating a high prevalence of poor self-management …

Objective: Recent literature has documented the psychosocial consequences of pediatric
obesity, including poor health‐related quality of life (HRQOL). The present study examines …

Objectives The purpose of this study was to systematically identify barriers to treatment
adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship …

BACKGROUND: Adherence rates for chronic pediatric conditions are approximately 50%.
The primary objective of the study was to assess rates of adherence using four different …

Objective: Critical gaps remain in our understanding of the obesigenic family environment.
This study examines parent and family characteristics among obese youth presenting for …

… Modi AC, Guilfoyle SM. Adherence to antiepileptic drug therapy across the developmental …
Modi AC, Guilfoyle SM. Adherence to antiepileptic drug therapy across the developmental life-…