Table 1.

Rank ordering of domains selected by patients and HCP, based on proportion of respondents that selected each domain in their top 10.

	Domain	Total, n = 638	Patients, n = 510	HCP, n = 101	Caregivers, n = 27	p
1	Muscle symptoms	96.2	96.1	99.0	88.9	0.045
2	Fatigue	82.4	85.9	66.3	77.8	< 0.0001
3	Levels of physical activity	70.7	68.4	83.2	66.7	0.011
4	Medication side effects	65.8	66.7	59.4	74.1	0.243
5	Pain	59.9	59.4	59.4	70.4	0.524
6	Skin symptoms	54.9	51.6	72.3	51.9	0.001
7	Lung symptoms	53.6	48.8	83.2	33.3	< 0.0001
8	Dysphagia	50.0	45.5	76.2	37.0	< 0.0001
9	Increased risk of infection	43.9	44.9	34.7	59.3	0.043
10	Work ability	45.1	42.7	61.4	29.6	0.001
11	Cognitive impact	37.9	41.8	14.9	51.9	< 0.0001
12	Joint symptoms	44.7	41.6	62.4	37.0	< 0.0001
13	Difficulty sleeping	34.6	39.0	9.9	44.4	< 0.0001
14	Emotional distress	35.7	37.1	23.8	55.6	0.003
15	Gastrointestinal tract symptoms	34.3	36.5	22.8	37.0	0.029
16	Dryness of eyes and/or mouth	27.3	31.6	5.0	29.6	< 0.0001
17	Household activities	29.5	29.6	30.7	22.2	0.684
18	Cardiovascular symptoms	30.1	27.8	45.5	14.8	< 0.0001
19	Leisure activities	25.4	26.7	21.8	14.8	0.256
20	Interaction^*	23.5	24.9	8.9	51.9	< 0.0001
21	Personal care	17.7	15.1	31.7	14.8	< 0.0001
22	Relation and/or intimacy	14.1	14.9	7.9	22.2	0.085
23	Incontinence	11.0	12.7	3.0	7.4	0.013
24	Social gathering	11.6	10.8	16.8	7.4	0.175

Values are % unless otherwise specified.
↵* Interaction with healthcare personnel and authorities. Values in bold face are statistically significant. HCP: healthcare providers.