RT Journal Article
SR Electronic
T1 Incorporating the patient perspective into outcome assessment in rheumatoid arthritis--progress at OMERACT 7.
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 2250
OP 2256
VO 32
IS 11
A1 John R Kirwan
A1 Sarah E Hewlett
A1 Turid Heiberg
A1 Rod A Hughes
A1 Maggie Carr
A1 Maggie Hehir
A1 Tore K Kvien
A1 Patricia Minnock
A1 Stanton P Newman
A1 Enid M Quest
A1 Erik Taal
A1 Janney Wale
YR 2005
UL http://www.jrheum.org/content/32/11/2250.abstract
AB The Patient Perspective Workshop at OMERACT 7 addressed the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease. A particular emphasis at this workshop was placed on fatigue, but other areas included well-being, real-time assessment, patient priorities, and needs in early and late disease. Through a series of overview presentations, discussion groups, and plenary sessions, workshop participants (who included 19 patients) clarified what is known and what are the outstanding issues for future research. The importance of further work on clarifying the validity of fatigue measurements in RA has been confirmed, and with at least one suitable instrument available there will be strong pressure to include fatigue in a redefined core set of outcome measures in RA. In the other 4 areas covered there are important issues that can be addressed by enquiry and experiment and that together provide a challenging research agenda. At the final plenary session the OMERACT conference endorsed, by a large majority, the proposal that fatigue may warrant consideration for inclusion in the OMERACT core set for RA.