RT Journal Article
SR Electronic
T1 Patient Perspective Workshop: Moving Towards OMERACT Guidelines for Choosing or Developing Instruments to Measure Patient-Reported Outcomes
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 1711
OP 1715
DO 10.3899/jrheum.110391
VO 38
IS 8
A1 JOHN R. KIRWAN
A1 JAMES F. FRIES
A1 SARAH E. HEWLETT
A1 RICHARD H. OSBORNE
A1 STANTON NEWMAN
A1 SABINA CICIRIELLO
A1 MART A. van de LAAR
A1 EMMA DURES
A1 PATRICIA MINNOCK
A1 TURID HEIBERG
A1 TESSA C. SANDERSON
A1 CAROLINE A. FLUREY
A1 AMY L. LEONG
A1 PAMELA MONTIE
A1 PAM RICHARDS
YR 2011
UL http://www.jrheum.org/content/38/8/1711.abstract
AB The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 brief introductory presentations elaborated the issues, and participants broke into discussion groups before reconvening to share insights, engage in a more general discussion of the issues, and vote on recommendations. Tradeoffs between using current imperfect measures and the long and complex process of developing new instruments were considered, together with the need for rigor in patient-reported outcome (PRO) instrument development. The main considerations for PRO instrument development were listed and a research agenda for action produced. As part of the agenda for action, it is recommended that researchers and patient partners work together to tackle these issues, and that OMERACT bring forward proposals for acceptable instrument development protocols that would meet an enhanced “Truth” statement in the OMERACT Filter.