TY - JOUR T1 - Prioritized Agenda for Mental Health Research in Pediatric Rheumatology from the Childhood Arthritis and Rheumatology Research Alliance Mental Health Workgroup JF - The Journal of Rheumatology JO - J Rheumatol DO - 10.3899/jrheum.190361 SP - jrheum.190361 AU - Tamar B Rubinstein AU - Ekemini A Ogbu AU - Martha Rodriguez AU - Lindsay Waqar AU - Jennifer MP Woo AU - Alaina M Davis AU - William Blaine Lapin AU - Lawrence Ng AU - Erin Treemarcki AU - Emily von Scheven AU - Andrea M Knight Y1 - 2020/01/15 UR - http://www.jrheum.org/content/early/2020/01/10/jrheum.190361.abstract N2 - Objective Mental health problems are prevalent in youth with rheumatologic disease. Gaps in knowledge exist regarding their impact, as well as strategies for detection and effective treatment. To address these gaps, the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Mental Health Workgroup developed and prioritized an agenda of research topics. Methods We systematically reviewed the literature and identified 5 major research domains in further need of study: (A) mental health burden and relationship to pediatric rheumatologic disease, (B) impact of mental health disorders on outcomes, (C) mental health awareness and education, (D) mental health screening, and (E) mental health treatment. Research topics within these areas were developed by workgroup leaders and refined by the workgroup. Members were surveyed to prioritize the topics by importance, feasibility of study, and actionability. Results Fifty-nine members (57%) completed the survey. Among the proposed research topics, 31/33 were rated as highly important and 4/33 were rated highly for importance, feasibility, and actionability. Topics rated most important related to (A) mental health burden and relationship to rheumatologic disease, and (B) the impact of mental health on outcomes. Topics rated most feasible and actionable were related to (D) mental health screening. Conclusion Addressing gaps in knowledge regarding mental health in youth with rheumatologic disease is essential for improving care. We have identified high priority research topics regarding mental health of pediatric rheumatology patients in need of further investigation that are feasible to study and believed to lead to actionable results in patient care. ER -