@article {Milmanjrheum.181073, author = {Nataliya Milman and Eilish McConville and Joanna C. Robson and Annelies Boonen and Peter Tugwell and George A. Wells and Dipayan Chaudhuri and Jill Dawson and Gunnar Tomasson and Susan Ashdown and Don Gebhart and Georgia Lanier and Jacqueline Peck and Carol A. McAlear and Katherine S. Kellom and Peter F. Cronholm and Peter A. Merkel}, title = {Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health}, elocation-id = {jrheum.181073}, year = {2019}, doi = {10.3899/jrheum.181073}, publisher = {The Journal of Rheumatology}, abstract = {Objective Aspects of antineutrophil cytoplasmic antibodies{\textendash}associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF). Methods Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States. Results Categories identified as at least {\textquotedblleft}moderately relevant{\textquotedblright} by >= 5\% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts.}, issn = {0315-162X}, URL = {https://www.jrheum.org/content/early/2019/04/24/jrheum.181073}, eprint = {https://www.jrheum.org/content/early/2019/04/24/jrheum.181073.full.pdf}, journal = {The Journal of Rheumatology} }