TY - JOUR T1 - Core Outcome Sets Specifically for Longterm Observational Studies: OMERACT Special Interest Group Update in Rheumatoid Arthritis JF - The Journal of Rheumatology JO - J Rheumatol DO - 10.3899/jrheum.181076 SP - jrheum.181076 AU - Maria A. Lopez-Olivo AU - José B. Negrón Torres AU - Richard J. Zogala AU - Loreto Carmona AU - Karla Criner AU - Niti Goel AU - Laura Gonzalez-Lopez AU - Francesca Ingegnoli AU - Amye Leong AU - Lyn March AU - Beverly Shea AU - Vibeke Strand AU - Peter Tugwell AU - Tiffany Westrich-Robertson AU - Natalia V. Zamora AU - Robin Christensen AU - Maria E. Suarez-Almazor Y1 - 2019/03/01 UR - http://www.jrheum.org/content/early/2019/02/25/jrheum.181076.abstract N2 - Objective This is an update from the Outcome Measures in Rheumatology (OMERACT) Core Outcomes in Longterm Observational Studies Special Interest Group with a focus on rheumatoid arthritis. Methods Preliminary data and proposed next steps were outlined and discussed by participants. Results Domains identified after initial steps (systematic review and qualitative research) were pain, physical functioning, participation (i.e., work, social), longterm symptoms, fertility/family planning, emotional well-being, coping, financial status, and adverse events including death. Conclusion The group agreed conceptually that short-term core outcomes could be different from longer term ones. Participants emphasized the importance of analyzing the need for core domains specifically for longterm longitudinal observational studies. ER -