TY - JOUR T1 - Updating OMERACT Core Set of Domains for ANCA-Associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability and Health JF - The Journal of Rheumatology JO - J Rheumatol DO - 10.3899/jrheum.181073 SP - jrheum.181073 AU - Nataliya Milman AU - Eilish McConville AU - Joanna C. Robson AU - Annelies Boonen AU - Peter Tugwell AU - George A. Wells AU - Dipayan Chaudhuri AU - Jill Dawson AU - Gunnar Tomasson AU - Susan Ashdown AU - Don Gebhart AU - Georgia Lanier AU - Jacqueline Peck AU - Carol A. McAlear AU - Katherine S. Kellom AU - Peter F. Cronholm AU - Peter A. Merkel Y1 - 2019/02/01 UR - http://www.jrheum.org/content/early/2019/01/23/jrheum.181073.abstract N2 - Objective Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts. ER -