PT  - JOURNAL ARTICLE
AU  - Nataliya Milman
AU  - Eilish McConville
AU  - Joanna C.  Robson
AU  - Annelies Boonen
AU  - Peter Tugwell
AU  - George A.  Wells
AU  - Dipayan Chaudhuri
AU  - Jill Dawson
AU  - Gunnar Tomasson
AU  - Susan Ashdown
AU  - Don Gebhart
AU  - Georgia Lanier
AU  - Jacqueline Peck
AU  - Carol A.  McAlear
AU  - Katherine S.  Kellom
AU  - Peter F.  Cronholm
AU  - Peter A.  Merkel
TI  - Updating OMERACT Core Set of Domains for ANCA-Associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability and Health
AID  - 10.3899/jrheum.181073
DP  - 2019 Feb 01
TA  - The Journal of Rheumatology
PG  - jrheum.181073
4099  - http://www.jrheum.org/content/early/2019/01/23/jrheum.181073.short
4100  - http://www.jrheum.org/content/early/2019/01/23/jrheum.181073.full
AB  - Objective Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts.