RT Journal Article
SR Electronic
T1 Stiffness Is the Cardinal Symptom of Inflammatory Musculoskeletal Diseases, Yet Still Variably Measured: Report from the OMERACT 2016 Stiffness Special Interest Group
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 1904
OP 1910
DO 10.3899/jrheum.161073
VO 44
IS 12
A1 Serena Halls
A1 Premarani Sinnathurai
A1 Sarah Hewlett
A1 Sarah L. Mackie
A1 Lyn March
A1 Susan J. Bartlett
A1 Clifton O. Bingham III
A1 Rieke Alten
A1 Ina Campbell
A1 Catherine L. Hill
A1 Robert J. Holt
A1 Rod Hughes
A1 John R. Kirwan
A1 Amye L. Leong
A1 Ying Ying Leung
A1 Anne Lyddiatt
A1 Lorna Neill
A1 Ana-Maria Orbai
YR 2017
UL http://www.jrheum.org/content/44/12/1904.abstract
AB Objective. The objectives of the Outcome Measures in Rheumatology (OMERACT) Stiffness special interest group (SIG) are to characterize stiffness as an outcome in rheumatic disease and to identify and validate a stiffness patient-reported outcome (PRO) in rheumatology.Methods. At OMERACT 2016, international groups presented and discussed results of several concurrent research projects on stiffness: a literature review of rheumatoid arthritis (RA) stiffness PRO measures, a qualitative investigation into the RA and polymyalgia rheumatica patient perspective of stiffness, data-driven stiffness conceptual model development, development and testing of an RA stiffness PRO measure, and a quantitative work testing stiffness items in patients with RA and psoriatic arthritis.Results. The literature review identified 52 individual stiffness PRO measures assessing morning or early morning stiffness severity/intensity or duration. Items were heterogeneous, had little or inconsistent psychometric property evidence, and did not appear to have been developed according to the PRO development guidelines. A poor match between current stiffness PRO and the conceptual model identifying the RA patient experience of stiffness was identified, highlighting a major flaw in PRO selection according to the OMERACT filter 2.0.Conclusion. Discussions within the Stiffness SIG highlighted the importance of further research on stiffness and defined a research agenda.