RT Journal Article
SR Electronic
T1 Engaging Stakeholders and Promoting Uptake of OMERACT Core Outcome Instrument Sets
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP 1551
OP 1559
DO 10.3899/jrheum.161273
VO 44
IS 10
A1 Sean R. Tunis
A1 Lara J. Maxwell
A1 Ian D. Graham
A1 Beverley J. Shea
A1 Dorcas E. Beaton
A1 Clifton O. Bingham III
A1 Peter Brooks
A1 Philip G. Conaghan
A1 Maria Antonietta D’Agostino
A1 Maarten P. de Wit
A1 Laure Gossec
A1 Lyn M. March
A1 Lee S. Simon
A1 Jasvinder A. Singh
A1 Vibeke Strand
A1 George A. Wells
A1 Peter Tugwell
YR 2017
UL http://www.jrheum.org/content/44/10/1551.abstract
AB Objective. While there has been substantial progress in the development of core outcomes sets, the degree to which these are used by researchers is variable. We convened a special workshop on knowledge translation at the Outcome Measures in Rheumatology (OMERACT) 2016 with 2 main goals. The first focused on the development of a formal knowledge translation framework and the second on promoting uptake of recommended core outcome domain and instrument sets.Methods. We invited all 189 OMERACT 2016 attendees to the workshop; 86 attended, representing patient research partners (n = 15), healthcare providers/clinician researchers (n = 52), industry (n = 4), regulatory agencies (n = 4), and OMERACT fellows (n = 11). Participants were given an introduction to knowledge translation and were asked to propose and discuss recommendations for the OMERACT community to (1) strengthen stakeholder involvement in the core outcome instrument set development process, and (2) promote uptake of core outcome sets with a specific focus on the potential role of post-regulatory decision makers.Results. We developed the novel “OMERACT integrated knowledge translation” framework, which formalizes OMERACT’s knowledge translation strategies. We produced strategies to improve stakeholder engagement throughout the process of core outcome set development and created a list of creative and innovative ways to promote the uptake of OMERACT’s core outcome sets.Conclusion. The guidance provided in this paper is preliminary and is based on the views of the participants. Future work will engage OMERACT groups, “post-regulatory decision makers,” and a broad range of different stakeholders to identify and evaluate the most useful methods and processes, and to revise guidance accordingly.