PT  - JOURNAL ARTICLE
AU  - Jenna L.  Tress
AU  - David D.  Sherry
TI  - The Cost of Research: A Survey of Participating Sites in a Nationwide Registry
AID  - 10.3899/jrheum.141122
DP  - 2015 Feb 15
TA  - The Journal of Rheumatology
PG  - jrheum.141122
4099  - http://www.jrheum.org/content/early/2015/02/10/jrheum.141122.short
4100  - http://www.jrheum.org/content/early/2015/02/10/jrheum.141122.full
AB  - Objective Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion. Methods A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment. Results Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided. Conclusion This survey showed that reimbursement rates were well below the costs of enrollment.