RT Journal Article
SR Electronic
T1 A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The Juvenile Arthritis Multidimensional Assessment Report
JF The Journal of Rheumatology
JO J Rheumatol
FD The Journal of Rheumatology
SP jrheum.100930
DO 10.3899/jrheum.100930
A1 Giovanni Filocamo
A1 Alessandro Consolaro
A1 Benedetta Schiappapietra
A1 Sara Dalprà
A1 Bianca Lattanzi
A1 Silvia Magni-Manzoni
A1 Nicolino Ruperto
A1 Angela Pistorio
A1 Silvia Pederzoli
A1 Adele Civino
A1 Dinara Guseinova
A1 Ester Masala
A1 Stefania Viola
A1 Alberto Martini
A1 Angelo Ravelli
YR 2011
UL http://www.jrheum.org/content/early/2011/02/24/jrheum.100930.abstract
AB Objective To develop and test a new multidimensional questionnaire for assessment of children with juvenile idiopathic arthritis (JIA) in standard clinical care. Methods The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extraarticular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The JAMAR is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 7–18 years for use as a self-report. From March 2007 to September 2009, the questionnaire was completed by the parents of 618 children with JIA in 1814 visits and by 332 children in 749 visits. Results The JAMAR was found to be feasible and to possess face and content validity. All parents and children reported that the questionnaire was simple and easy to understand. Completion and scoring appeared to be quick, requiring < 15 minutes. There were very few missing data. Parents’ proxy-reported and children’s self-reported data were remarkably concordant. The JAMAR provided thorough information for the study patients about recent medical history and current health status. It performed similarly across different children’s ages and characterized the level of disease activity and disability well. Conclusion The development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA.