TY - JOUR T1 - An Internet-based Self-management Program with Telephone Support for Adolescents with Arthritis: A Pilot Randomized Controlled Trial JF - The Journal of Rheumatology JO - J Rheumatol DO - 10.3899/jrheum.091327 SP - jrheum.091327 AU - Jennifer N. Stinson AU - Patrick J. McGrath AU - Ellen D. Hodnett AU - Brian M. Feldman AU - Ciaran M. Duffy AU - Adam M. Huber AU - Lori B. Tucker AU - C. Ross Hetherington AU - Shirley M.L. Tse AU - Lynn R. Spiegel AU - Sarah Campillo AU - Navreet K. Gill AU - Meghan E. White Y1 - 2010/07/01 UR - http://www.jrheum.org/content/early/2010/06/28/jrheum.091327.abstract N2 - Objective To determine the feasibility of a 12-week Internet-based self-management program of disease-specific information, self-management strategies, and social support with telephone support for youth with juvenile idiopathic arthritis (JIA) and their parents, aimed at reducing physical and emotional symptoms and improving health-related quality of life (HRQOL). Methods A nonblind pilot randomized controlled trial (NCT01011179) was conducted to test the feasibility of the “Teens Taking Charge: Managing Arthritis Online” Internet intervention across 4 tertiary-level centers in Canada. Participants were 46 adolescents with JIA, ages 12 to 18 years, and 1 parent for each participant, who were randomized to the control arm (n = 24) or the Internet intervention (n = 22). Results The 2 groups were comparable on demographic and disease-related variables and treatment expectation at baseline. Attrition rates were 18.1% and 20.8%, respectively, from experimental and control groups. Ninety-one percent of participants randomized to the experimental group completed all 12 online modules and weekly phone calls with a coach in an average of 14.7 weeks (SD 2.1). The control group completed 90% of weekly attention-control phone calls. The Internet treatment was rated as acceptable by all youth and their parents. In posttreatment the experimental group had significantly higher knowledge (p < 0.001, effect size 1.32) and lower average weekly pain intensity (p = 0.03, effect size 0.78). There were no significant group differences in HRQOL, self-efficacy, adherence, and stress posttreatment. Conclusion Findings support the feasibility (acceptability, compliance, and user satisfaction) and initial efficacy of Internet delivery of a self-management program for improving disease-specific knowledge and reducing pain in youth with JIA. ER -