PT - JOURNAL ARTICLE AU - Jenna L. Tress AU - David D. Sherry TI - The Cost of Research: A Survey of Participating Sites in a Nationwide Registry AID - 10.3899/jrheum.141122 DP - 2015 Apr 01 TA - The Journal of Rheumatology PG - 702--705 VI - 42 IP - 4 4099 - http://www.jrheum.org/content/42/4/702.short 4100 - http://www.jrheum.org/content/42/4/702.full SO - J Rheumatol2015 Apr 01; 42 AB - Objective. Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion. Methods. A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment. Results. Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided. Conclusion. This survey showed that reimbursement rates were well below the costs of enrollment.