PT  - JOURNAL ARTICLE
AU  - Maarten de Wit
AU  - Willemina Campbell
AU  - Ana-Maria Orbai
AU  - William Tillett
AU  - Oliver FitzGerald
AU  - Dafna D. Gladman
AU  - Chris A. Lindsay
AU  - Neil J. McHugh
AU  - Philip J. Mease
AU  - Denis O’Sullivan
AU  - Ingrid Steinkoenig
AU  - Glenn Windisch
AU  - Niti Goel
TI  - Building Bridges between Researchers and Patient Research Partners: A Report from the GRAPPA 2014 Annual Meeting
AID  - 10.3899/jrheum.150123
DP  - 2015 Jun 01
TA  - The Journal of Rheumatology
PG  - 1021--1026
VI  - 42
IP  - 6
4099  - http://www.jrheum.org/content/42/6/1021.short
4100  - http://www.jrheum.org/content/42/6/1021.full
SO  - J Rheumatol2015 Jun 01; 42
AB  - Concurring with a worldwide trend to include the patient perspective in outcomes research, the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) recently engaged patients as collaborative partners in psoriatic arthritis (PsA) research. We summarize Building Bridges, a session held at the GRAPPA 2014 annual meeting, where interactive dialogue was encouraged between all participants regarding GRAPPA’s vision for patient research partner (PRP) involvement, including the mutual understanding of the roles and responsibilities of PRP and researchers in GRAPPA’s working groups, meetings, and governance arrangements. We conclude that involving PRP in GRAPPA projects is pivotal to optimizing incorporation of the patient perspective in psoriasis and PsA research.