Research ArticleAccepted Article
Scope of outcomes in trials and observational studies of interventions targeting medication adherence in rheumatic conditions: a systematic review
Ayano Kelly, Luke Crimston-Smith, Allison Tong, Susan J Bartlett, Charlotte Bekker, Robin Christensen, Mary A. De Vera, Maarten de Wit, Vicki Evans, Michael Gill, Lyn March, Karine Manera, Robby Nieuwlaat, Shahrzad Salmasi, Marieke Scholte-Voshaar, Jasvinder A Singh, Daniel Sumpton, Karine Toupin-April, Peter Tugwell, Bart van den Bemt, Suzanne Verstappen and Kathleen Tymms
The Journal of Rheumatology December 2019, jrheum.190726; DOI: https://doi.org/10.3899/jrheum.190726
Ayano Kelly
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Luke Crimston-Smith
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Allison Tong
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Susan J Bartlett
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Charlotte Bekker
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Robin Christensen
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Mary A. De Vera
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Maarten de Wit
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Vicki Evans
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Michael Gill
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Lyn March
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Karine Manera
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Robby Nieuwlaat
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Shahrzad Salmasi
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Marieke Scholte-Voshaar
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Jasvinder A Singh
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Daniel Sumpton
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Karine Toupin-April
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Peter Tugwell
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Bart van den Bemt
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Suzanne Verstappen
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Kathleen Tymms
From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children’s Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children’s Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia, ayano.kelly@anu.edu.au
Published eLetters
eLetters are comments published online only and are not peer-reviewed. Publication of eLetter submissions is not guaranteed, and all submissions are reviewed and edited at the discretion of The Journal's staff.
If you wish to publish Letters to the Editor or Correspondence, please submit through our online submission system ScholarOne Manuscripts.
Jump to comment:
No eLetters have been published for this article.
In this issue
The Journal of Rheumatology
Vol. 51, Issue 3
1 Mar 2024
Accepted manuscript
Scope of outcomes in trials and observational studies of interventions targeting medication adherence in rheumatic conditions: a systematic review
Ayano Kelly, Luke Crimston-Smith, Allison Tong, Susan J Bartlett, Charlotte Bekker, Robin Christensen, Mary A. De Vera, Maarten de Wit, Vicki Evans, Michael Gill, Lyn March, Karine Manera, Robby Nieuwlaat, Shahrzad Salmasi, Marieke Scholte-Voshaar, Jasvinder A Singh, Daniel Sumpton, Karine Toupin-April, Peter Tugwell, Bart van den Bemt, Suzanne Verstappen, Kathleen Tymms
The Journal of Rheumatology Dec 2019, jrheum.190726; DOI: 10.3899/jrheum.190726
Accepted manuscript
Scope of outcomes in trials and observational studies of interventions targeting medication adherence in rheumatic conditions: a systematic review
Ayano Kelly, Luke Crimston-Smith, Allison Tong, Susan J Bartlett, Charlotte Bekker, Robin Christensen, Mary A. De Vera, Maarten de Wit, Vicki Evans, Michael Gill, Lyn March, Karine Manera, Robby Nieuwlaat, Shahrzad Salmasi, Marieke Scholte-Voshaar, Jasvinder A Singh, Daniel Sumpton, Karine Toupin-April, Peter Tugwell, Bart van den Bemt, Suzanne Verstappen, Kathleen Tymms
The Journal of Rheumatology Dec 2019, jrheum.190726; DOI: 10.3899/jrheum.190726