Research ArticleArticle
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G. O’Neill, Angelique F. Ralph and Allison Tong
The Journal of Rheumatology March 2017, jrheum.160720; DOI: https://doi.org/10.3899/jrheum.160720
David J. Tunnicliffe
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Davinder Singh-Grewal
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Jonathan C. Craig
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Martin Howell
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Peter Tugwell
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Fiona Mackie
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Ming-Wei Lin
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Sean G. O’Neill
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Angelique F. Ralph
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Allison Tong
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney, Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario, Canada. DJT is funded by a postgraduate scholarship from the Sydney Medical School, The University of Sydney. AT is supported by a National Health and Medical Research Council Fellowship (11067716). D.J. Tunnicliffe, PhD candidate, MIPH, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; D. Singh-Grewal, PhD, Clinical Senior Lecturer, Pediatric Rheumatologist, Sydney Medical School, The University of Sydney, and Department of Rheumatology, The Sydney Children’s Hospital Network, and Faculty of Medicine, The University of New South Wales; J.C. Craig, PhD, Professor of Clinical Epidemiology, Pediatric Nephrologist, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; M. Howell, PhD, Research Associate, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; P. Tugwell, MD, Director, Centre for Global Health, University of Ottawa; F. Mackie, PhD, Conjoint Senior Lecturer, Pediatric Nephrologist, School of Women’s and Children’s Health, The University of New South Wales, and Department of Nephrology, Sydney Children’s Hospital Randwick; M.W. Lin, MBBS, Clinical lecturer, Immunologist, Sydney Medical School, The University of Sydney, and Department of Immunology, Westmead Hospital; S.G. O’Neill, PhD, FRACP, Rheumatologist, Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research; A.F. Ralph, PhD Candidate, BPsych(Hons), Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead; A. Tong, PhD, National Health Medical Research Council Career Development Fellow, Sydney School of Public Health, The University of Sydney, and the Centre for Kidney Research, The Children’s Hospital at Westmead. Address correspondence to Mr. D.J. Tunnicliffe, Centre for Kidney Research, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia. E-mail: david.tunnicliffe@health.nsw.gov.au. Accepted for publication January 11, 2017.
Data supplements
Data Supplement
Files in this Data Supplement:
In this issue
The Journal of Rheumatology
Vol. 51, Issue 4
1 Apr 2024
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G. O’Neill, Angelique F. Ralph, Allison Tong
The Journal of Rheumatology Mar 2017, jrheum.160720; DOI: 10.3899/jrheum.160720
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G. O’Neill, Angelique F. Ralph, Allison Tong
The Journal of Rheumatology Mar 2017, jrheum.160720; DOI: 10.3899/jrheum.160720