Research ArticleArticle
Current Status, Goals, and Research Agenda for Outcome Measures Development in Behçet Syndrome: Report from OMERACT 2014
Gulen Hatemi, Yesim Ozguler, Haner Direskeneli, Alfred Mahr, Ahmet Gul, Virna Levi, Sibel Z. Aydin, Gonca Mumcu, Ozlem Sertel-Berk, Randall M. Stevens, Hasan Yazici and Peter A. Merkel
The Journal of Rheumatology September 2015, jrheum.141147; DOI: https://doi.org/10.3899/jrheum.141147
Gulen Hatemi
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Yesim Ozguler
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Haner Direskeneli
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Alfred Mahr
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Ahmet Gul
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Virna Levi
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Sibel Z. Aydin
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Gonca Mumcu
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Ozlem Sertel-Berk
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Randall M. Stevens
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Hasan Yazici
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
Peter A. Merkel
Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant. G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
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- Gulen Hatemi,
- Yesim Ozguler,
- Haner Direskeneli,
- Alfred Mahr,
- Ahmet Gul,
- Virna Levi,
- Sibel Z. Aydin,
- Gonca Mumcu,
- Ozlem Sertel-Berk,
- Randall M. Stevens,
- Hasan Yazici and
- Peter A. Merkel
- Istanbul University Cerrahpasa Faculty of Medicine, Istanbul; Division of Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey; Department of Internal Medicine, University Paris Diderot, Paris, France; Division of Rheumatology, Koc University Faculty of Medicine, Istanbul; Faculty of Health Sciences, Marmara University; Department of Psychology, Istanbul University, Istanbul, Turkey; Celgene Corporation, Warren, New Jersey; Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology, New Brunswick, New Jersey; Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Sponsored by the Vasculitis Clinical Research Consortium, which has received support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54AR057319 and U01 AR51874 04), the National Center for Research Resources (U54 RR019497), the Office of Rare Diseases Research, and the National Center for Advancing Translational Science. Additional support for the work of the OMERACT vasculitis working group was received through a Patient-Centered Outcomes Research Institute Pilot Project Grant.
G. Hatemi, MD, Associate Professor of Medicine, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; Y. Ozguler, MD, Fellow in Rheumatology, Division of Rheumatology, Istanbul University Cerrahpasa Faculty of Medicine; H. Direskeneli, MD, Professor of Rheumatology, Division of Rheumatology, Marmara University Faculty of Medicine; A. Mahr, MD, PhD, Professor of Internal Medicine, Department of Internal Medicine, University Paris Diderot; A. Gul, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University; V. Levi, BA, Patient Research Partner, Istanbul; S.Z. Aydin, MD, Associate Professor of Rheumatology, Division of Rheumatology, Koc University Faculty of Medicine; G. Mumcu, DDS, PhD, Professor in Health Management, Faculty of Health Sciences, Marmara University; O. Sertel-Berk, MA, Associate Professor of Psychology, Department of Psychology, Istanbul University; R.M. Stevens, MD, Celgene Corporation, and Clinical Professor of Medicine, Rutgers, Robert Wood Johnson Medical School, Department of Rheumatology; H. Yazici, MD, Professor of Rheumatology, Division of Rheumatology, Department of Internal Medicine, Istanbul University Cerrahpasa Faculty of Medicine; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Medicine and Department of Biostatistics and Epidemiology, University of Pennsylvania.
Address correspondence to Dr. P.A. Merkel, Section of Rheumatology, University of Pennsylvania, White Building, 5th Floor, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu.
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The Journal of Rheumatology
Vol. 51, Issue 4
1 Apr 2024
Current Status, Goals, and Research Agenda for Outcome Measures Development in Behçet Syndrome: Report from OMERACT 2014
Gulen Hatemi, Yesim Ozguler, Haner Direskeneli, Alfred Mahr, Ahmet Gul, Virna Levi, Sibel Z. Aydin, Gonca Mumcu, Ozlem Sertel-Berk, Randall M. Stevens, Hasan Yazici, Peter A. Merkel
The Journal of Rheumatology Sep 2015, jrheum.141147; DOI: 10.3899/jrheum.141147
Current Status, Goals, and Research Agenda for Outcome Measures Development in Behçet Syndrome: Report from OMERACT 2014
Gulen Hatemi, Yesim Ozguler, Haner Direskeneli, Alfred Mahr, Ahmet Gul, Virna Levi, Sibel Z. Aydin, Gonca Mumcu, Ozlem Sertel-Berk, Randall M. Stevens, Hasan Yazici, Peter A. Merkel
The Journal of Rheumatology Sep 2015, jrheum.141147; DOI: 10.3899/jrheum.141147