Research ArticleArticle
Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody–associated Vasculitis Using the OMERACT Process
Joanna C. Robson, Nataliya Milman, Gunnar Tomasson, Jill Dawson, Peter F. Cronholm, Katherine Kellom, Judy Shea, Susan Ashdown, Maarten Boers, Annelies Boonen, George C. Casey, John T. Farrar, Don Gebhart, Jeffrey Krischer, Georgia Lanier, Carol A. McAlear, Jacqueline Peck, Antoine G. Sreih, Peter S. Tugwell, Raashid A. Luqmani and Peter A. Merkel
The Journal of Rheumatology September 2015, jrheum.141143; DOI: https://doi.org/10.3899/jrheum.141143
Joanna C. Robson
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Nataliya Milman
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Gunnar Tomasson
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Jill Dawson
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Peter F. Cronholm
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Katherine Kellom
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Judy Shea
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Susan Ashdown
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Maarten Boers
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Annelies Boonen
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
George C. Casey
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
John T. Farrar
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Don Gebhart
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Jeffrey Krischer
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Georgia Lanier
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Carol A. McAlear
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Jacqueline Peck
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Antoine G. Sreih
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Peter S. Tugwell
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Raashid A. Luqmani
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
Peter A. Merkel
From the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford, Oxford, UK; Division of Rheumatology, University of Ottawa, Ottawa, Ontario, Canada; Department of Public Health Sciences, University of Iceland, Reykjavik, Iceland; Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK; Department of Family Medicine and Community Health, and Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania, and Department of Medicine, Hospital of the University of Pennsylvania, Philadelphia, Pennsylvania, USA; Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht, Maastricht, The Netherlands; Vasculitis Foundation, Denver, Colorado, USA; Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida, Tampa, Florida, USA; Vasculitis Clinical Research Consortium, and Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania, USA. Sponsored by the Vasculitis Clinical Research Consortium, with support from the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (U54 AR057319 and U01 AR51874), the National Center for Research Resources (U54 RR019497); and the Office of Rare Diseases Research. Additional support for the work of the OMERACT vasculitis working group was received by a Patient-Centered Outcomes Research Institute Pilot Project Grant, the Medical Research Fund, Oxford, and the Oxfordshire Health Services Research Committee. Dr. Robson and Professor Luqmani are supported in part by the National Institute for Health Research Musculoskeletal Biomedical Research Unit, Oxford, UK. Dr. Milman was supported by a UCB/Canadian Rheumatology Association/Arthritis Society postgraduate rheumatology fellowship award and a research fellowship from the Department of Medicine at the Ottawa Hospital. J.C. Robson, MBBS, PhD, Clinical Lecturer in Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science, University of Oxford; N. Milman, MD, FRCPC, Clinical Lecturer in Rheumatology, Division of Rheumatology, University of Ottawa; G. Tomasson, MD, Department of Public Health Sciences, University of Iceland; J. Dawson, MA, MSc, DPhil, University Research Lecturer and Senior Research Scientist, Nuffield Department of Population Health (HSRU), University of Oxford; P.F. Cronholm, MD, MSCE, FAAFP, Associate Professor, Department of Family Medicine and Community Health, University of Pennsylvania; K. Kellom, BA, Senior Research Coordinator, Department of Family Medicine and Community Health, University of Pennsylvania; J. Shea, PhD, Professor of Medicine, Department of Medicine; Hospital of the University of Pennsylvania; S. Ashdown, RGN, RM, Patient Partner, King’s Sutton, Banbury, Northamptonshire, UK; M. Boers, MSc, MD, PhD, Professor of Clinical Epidemiology, Departments of Epidemiology and Biostatistics; and Rheumatology, VU University Medical Center; A. Boonen, MD, PhD, Professor of Rheumatology, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, University Maastricht; G.C. Casey Jr., MBA, Patient Partner, Vasculitis Foundation, Denver, Colorado, USA; J.T. Farrar, Associate Professor of Epidemiology, Neurology, and Anesthesia, Department of Biostatistics and Epidemiology, University of Pennsylvania; D. Gebhart, MD, Patient Partner, Columbus, Ohio, USA; J. Krischer, PhD, Professor, Division of Biostatistics and Informatics, Department of Pediatrics, College of Medicine, University of South Florida; G. Lanier, MEd, Patient Partner, Framingham, Massachusetts, USA; C.A. McAlear, MA, Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania; J. Peck, RN, Patient Partner, Grove, Oxfordshire, UK; A.G. Sreih, MD, Assistant Professor Medicine, Division of Rheumatology, University of Pennsylvania; P. Tugwell, MD, FRCPC, Professor of Medicine and Epidemiology and Community Medicine, University of Ottawa; R.A. Luqmani, DM, FRCP, FRCPE, Professor of Rheumatology, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science; P.A. Merkel, MD, MPH, Professor of Medicine and Epidemiology, Division of Rheumatology and Department of Biostatistics and Epidemiology, University of Pennsylvania. Address correspondence to Dr. P.A. Merkel, Division of Rheumatology, University of Pennsylvania, 8th Floor Penn Tower, 3400 Spruce St., Philadelphia, Pennsylvania 19104, USA. E-mail: pmerkel@upenn.edu
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In this issue
The Journal of Rheumatology
Vol. 51, Issue 4
1 Apr 2024
Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody–associated Vasculitis Using the OMERACT Process
Joanna C. Robson, Nataliya Milman, Gunnar Tomasson, Jill Dawson, Peter F. Cronholm, Katherine Kellom, Judy Shea, Susan Ashdown, Maarten Boers, Annelies Boonen, George C. Casey, John T. Farrar, Don Gebhart, Jeffrey Krischer, Georgia Lanier, Carol A. McAlear, Jacqueline Peck, Antoine G. Sreih, Peter S. Tugwell, Raashid A. Luqmani, Peter A. Merkel
The Journal of Rheumatology Sep 2015, jrheum.141143; DOI: 10.3899/jrheum.141143
Exploration, Development, and Validation of Patient-reported Outcomes in Antineutrophil Cytoplasmic Antibody–associated Vasculitis Using the OMERACT Process
Joanna C. Robson, Nataliya Milman, Gunnar Tomasson, Jill Dawson, Peter F. Cronholm, Katherine Kellom, Judy Shea, Susan Ashdown, Maarten Boers, Annelies Boonen, George C. Casey, John T. Farrar, Don Gebhart, Jeffrey Krischer, Georgia Lanier, Carol A. McAlear, Jacqueline Peck, Antoine G. Sreih, Peter S. Tugwell, Raashid A. Luqmani, Peter A. Merkel
The Journal of Rheumatology Sep 2015, jrheum.141143; DOI: 10.3899/jrheum.141143