Research ArticleArticle
Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP
Peter P. Cheung, Maarten de Wit, Clifton O. Bingham 3rd, John R. Kirwan, Amye Leong, Lyn M. March, Pam Montie, Marieke Scholte-Voshaar and Laure Gossec
The Journal of Rheumatology April 2015, jrheum.141011; DOI: https://doi.org/10.3899/jrheum.141011
Peter P. Cheung
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Maarten de Wit
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Clifton O. Bingham 3rd
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
John R. Kirwan
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Amye Leong
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Lyn M. March
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Pam Montie
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Marieke Scholte-Voshaar
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
Laure Gossec
From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France. P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d’Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology. Address correspondence to Dr. P.P. Cheung, Division of Rheumatology, National University Hospital, 1E Kent Ridge Road, NUHS Tower Block, Level 10, Singapore 119228. E-mail: Peter_cheung@nuhs.edu.sg
In this issue
The Journal of Rheumatology
Vol. 51, Issue 4
1 Apr 2024
Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP
Peter P. Cheung, Maarten de Wit, Clifton O. Bingham , John R. Kirwan, Amye Leong, Lyn M. March, Pam Montie, Marieke Scholte-Voshaar, Laure Gossec
The Journal of Rheumatology Apr 2015, jrheum.141011; DOI: 10.3899/jrheum.141011
Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP
Peter P. Cheung, Maarten de Wit, Clifton O. Bingham , John R. Kirwan, Amye Leong, Lyn M. March, Pam Montie, Marieke Scholte-Voshaar, Laure Gossec
The Journal of Rheumatology Apr 2015, jrheum.141011; DOI: 10.3899/jrheum.141011