Research ArticleArticle
Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham III, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song and Lisa Christopher-Stine
The Journal of Rheumatology January 2014, jrheum.131247; DOI: https://doi.org/10.3899/jrheum.131247
Helene Alexanderson
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Maria Del Grande
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Clifton O. Bingham III
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Ana-Maria Orbai
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Catherine Sarver
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Katherine Clegg-Smith
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Ingrid E. Lundberg
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Yeong Wook Song
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
Lisa Christopher-Stine
From the Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet, Stockholm, Sweden; Department of Rheumatology, Klinik St. Katharinental, Diessenhofen, Switzerland; Division of Rheumatology, Johns Hopkins University, Baltimore; Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University Hospital in Solna, Karolinska Institutet, Stockholm, Sweden; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, Korea. The Myositis Special Interest Group received financial support from Crescent Health Care and NuFactor. Qualitative studies reported were supported through the Ira Fine Discovery Fund, the Sibley Hospital Memorial Fund, and the Johns Hopkins Arthritis Center Discovery Fund. H. Alexanderson was supported by the Centre for Care Science (Centrum för Vårdvetenskap), Karolinska Institutet and the Association Myopathie Francaise. A-M. Orbai is supported by US National Institutes of Health (NIH) T32-AR48522 and was supported to attend OMERACT 11 by the American College of Rheumatology and the Johns Hopkins Arthritis Center Discovery Fund. C.O. Bingham has received research grants and/or served as a consultant to Abbott, Amgen, American College of Rheumatology, Bristol Myers Squibb, Celgene, Genentech/Roche, Janssen/Johnson and Johnson/Centocor, NIH, Pfizer, and UCB. L. Christopher-Stine is supported by The Huayi and Siuling Zhang Discovery Fund; she has received research grants or served as a consultant to Novartis, MedImmune, Biogen Idec, URL, Questcor, Crescent Healthcare, and NIH. H. Alexanderson, MD, Department of Neuroscience, Care Science and Society, Division of Physical Therapy, Karolinska Institutet; M. Del Grande, MD, Department of Rheumatology, Klinik St. Katharinental, and Division of Rheumatology, Johns Hopkins University; C.O. Bingham III, MD; A-M. Orbai, MD, Division of Rheumatology, Johns Hopkins University; C. Sarver, MD; K. Clegg-Smith, Bloomberg School of Public Health, Johns Hopkins University; I.E. Lundberg, MD, Rheumatology Unit, Department of Medicine, at Karolinska University Hospital in Solna, Karolinska Institutet; Y.W. Song, MD, Division of Rheumatology, Rheumatology Unit, Department of Internal Medicine, Seoul National University Hospital; L. Christopher-Stine, MD, Division of Rheumatology, Johns Hopkins University. H. Alexanderson and M. Del Grande contributed equally to this report. Address correspondence to L. Christopher-Stine; 5200 Eastern Ave., Mason F. Lord Center Tower, Suite 4500, Baltimore, Maryland 21224, USA. E-mail: lchrist4@jhmi.edu
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In this issue
The Journal of Rheumatology
Vol. 51, Issue 3
1 Mar 2024
Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song, Lisa Christopher-Stine
The Journal of Rheumatology Jan 2014, jrheum.131247; DOI: 10.3899/jrheum.131247
Patient-reported Outcomes and Adult Patients’ Disease Experience in the Idiopathic Inflammatory Myopathies. Report from the OMERACT 11 Myositis Special Interest Group
Helene Alexanderson, Maria Del Grande, Clifton O. Bingham, Ana-Maria Orbai, Catherine Sarver, Katherine Clegg-Smith, Ingrid E. Lundberg, Yeong Wook Song, Lisa Christopher-Stine
The Journal of Rheumatology Jan 2014, jrheum.131247; DOI: 10.3899/jrheum.131247