Research ArticleSystemic Lupus Erythematosus
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G. O’Neill, Angelique F. Ralph and Allison Tong
The Journal of Rheumatology April 2017, 44 (4) 444-451; DOI: https://doi.org/10.3899/jrheum.160720
David J. Tunnicliffe
From the Sydney School of Public Health, and Sydney Medical School, The University of Sydney; Centre for Kidney Research, The Children’s Hospital at Westmead; Department of Rheumatology, The Sydney Children’s Hospital Network; Faculty of Medicine, and School of Women’s and Children’s Health, The University of New South Wales; Department of Nephrology, Sydney Children’s Hospital Randwick; Department of Immunology, Westmead Hospital; Department of Rheumatology, Liverpool Hospital, South Western Sydney Clinical School, University of New South Wales, Ingham Institute for Applied Medical Research, Sydney,
Australia; Centre for Global Health, University of Ottawa, Ottawa, Ontario,
Canada.
Davinder Singh-Grewal
Jonathan C. Craig
Martin Howell
Peter Tugwell
Fiona Mackie
Ming-Wei Lin
Sean G. O’Neill
Angelique F. Ralph
REFERENCES
- 1.↵
- Crowe S,
- Fenton M,
- Hall M,
- Cowan K,
- Chalmers I
- 2.↵
- World Health Organization
- 3.↵
- Entwistle VA,
- Renfrew MJ,
- Yearley S,
- Forrester J,
- Lamont T
- 4.↵
- Howrey BT,
- Thompson BL,
- Borkan J,
- Kennedy LB,
- Hughes LS,
- Johnson BH,
- et al.
- 5.↵
- 6.↵
- Buchbinder R,
- Maher C,
- Harris IA
- 7.↵
- Crawford MJ,
- Rutter D,
- Manley C,
- Weaver T,
- Bhui K,
- Fulop N,
- et al.
- 8.↵
- Crowe S,
- Regan S
- 9.↵
- Kirwan JR,
- Newman S,
- Tugwell PS,
- Wells GA
- 10.↵
- Strauss VY,
- Carter P,
- Ong BN,
- Bedson J,
- Jordan KP,
- Jinks C,
- et al;
- Arthritis Research UK Research Users’ Group
- 11.↵
- 12.↵
- 13.↵
- 14.↵
- Lawson EF,
- Hersh AO,
- Trupin L,
- von Scheven E,
- Okumura MJ,
- Yazdany J,
- et al.
- 15.↵
- 16.↵
- 17.↵
- Falcini F,
- Nacci F
- 18.↵
- Lingard L,
- Albert M,
- Levinson W
- 19.↵
- 20.↵
- 21.↵
- Colucci E
- 22.↵
- Kruegar R
- 23.↵
- Guyatt G,
- Rennie D
- 24.↵
- Morgan TA,
- Watson L,
- McCann LJ,
- Beresford MW
- 25.↵
- 26.↵
- Liamputtong P
- 27.↵
- 28.↵
- Pope C,
- Ziebland S,
- Mays N
- 29.↵
- Bertsias G,
- Ioannidis JP,
- Boletis J,
- Bombardieri S,
- Cervera R,
- Dostal C,
- et al;
- Task Force of the EULAR Standing Committee for International Clinical Studies Including Therapeutics
- 30.↵
- van Vollenhoven RF,
- Mosca M,
- Bertsias G,
- Isenberg D,
- Kuhn A,
- Lerstrøm K,
- et al.
- 31.↵
- Gladman DD,
- Urowitz MB
- 32.↵
- Golder V,
- Connelly K,
- Staples M,
- Morand E,
- Hoi A
- 33.↵
- 34.↵
- 35.↵
- Tunnicliffe DJ,
- Singh-Grewal D,
- Chaitow J,
- Mackie F,
- Manolios N,
- Lin MW,
- et al.
- 36.↵
- Moorthy L,
- Peterson MG,
- Hassett A,
- Baratelli M,
- Lehman TJ
- 37.↵
- Crowley R,
- Wolfe I,
- Lock K,
- McKee M
- 38.↵
- Nikpour M,
- Bridge JA,
- Richter S
- 39.↵
- 40.↵
- U.S. Department of Health and Human Services, National Institutes of Health, National Institute of Arthritis and Musculoskeletal and Skin Diseases
- 41.↵
- 42.↵
- 43.↵
- 44.↵
- 45.↵
- Tong A,
- Jones J,
- Speerin R,
- Filocamo K,
- Chaitow J,
- Singh-Grewal D
- 46.↵
- 47.↵
- Kitzinger J
- 48.↵
- 49.↵
- Mackie FE,
- Kainer G,
- Adib N,
- Boros C,
- Elliott EJ,
- Fahy R,
- et al.
- 50.↵
- Pineles D,
- Valente A,
- Warren B,
- Peterson MG,
- Lehman TJ,
- Moorthy LN
In this issue
The Journal of Rheumatology
Vol. 44, Issue 4
1 Apr 2017
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G. O’Neill, Angelique F. Ralph, Allison Tong
The Journal of Rheumatology Apr 2017, 44 (4) 444-451; DOI: 10.3899/jrheum.160720
Healthcare and Research Priorities of Adolescents and Young Adults with Systemic Lupus Erythematosus: A Mixed-methods Study
David J. Tunnicliffe, Davinder Singh-Grewal, Jonathan C. Craig, Martin Howell, Peter Tugwell, Fiona Mackie, Ming-Wei Lin, Sean G. O’Neill, Angelique F. Ralph, Allison Tong
The Journal of Rheumatology Apr 2017, 44 (4) 444-451; DOI: 10.3899/jrheum.160720